From: "twoblueboots"
Date: Sun Oct 16, 2005
Subject: HGH and fibromyalgia
Hello Ellis,
I am a newbie with severe fibromyalgia. I have tried just about
everything to help my condition--with few results if any. I would
really like to try using HGH to ease the symptoms but I need to
gather a lot of information.
My doctor is willing to allow me to try it but he has never heard
of it being used for FMS and needs to know specifics and so I need
to supply him with some information.
I need to know where I can find some concrete info on this as well
as dosage, what to watch out for, precautions, best brands etc.
and any other info available.
I have read some of the fibro posts and would appreciate any and all
other information that you are willing to share. I checked medscape
for "HGH and fibromyalgia" but came up with 29,000 articles to read
and most of them were not applicable.
Thank you everyone. Hope to hear from you soon.
Lin
[Hello Lin...
I am not a doctor but...
First of all, take a blood test and check for IGF-1, DHEA, and
hematocrit and hemoglobin. I am going to place a bet and I will
give 2 to 1 odds to anybody that wants to accept, including your
doctor who should have known, that you will come out "very low"
on all three of these.
HGH is definitely good for fibromyalgia because it will increase
IGF-1... it will also increase and improve your circulatory system, so it
will probably help blood circulation which increases oxygenization a little.
DHEA is also good for fibromyalgia, and is also very inexpensive...
EPO will raise your red blood cells, which will increase hemoglobin,
which carries oxygen, which will increase the total amount of oxygen
circulating in your body. Low oxygen might easily be the reason
why you feel tired, and raising red blood cells will increase your
energy and improve everything in your body. You might also need a
little extra iron, for the increased amount of red blood cells.
But EPO is still in the incubator stage and you would be a pioneer
in the use of EPO for fibromyalgia... so you might have a problem
convincing your doctor to prescribe EPO, because they seem to be
as scared of EPO now as they were in 1991 of trying HGH, when HGH
was still relatively unknown. However, there is no reason to fear
EPO will cause you a heart attack unless you raise your hematocrit
from 39% (I will bet your hematocrit is below 40%) to above 70%,
which is utterly impossible to do accidentally, and there is no
other side effect that I have ever heard about except death by
heart attack. (That would be quite a side effect, if it was true...
but it isn't...)
The dose of HGH for fibromyalgia that has been reported here on
Rejuvenation is about 1/2 iu per day.
I wish you could just tell your doctor "I have nothing to lose
and everything to gain, so please just prescribe it and let's
get on with it... don't be afraid, and don't insist on more proof
because there is no downside to taking HGH, and much less, 1/2 iu
per day... thanks... "
But I suppose you can't say that to a doctor, so don't tell him
that. Tell him that your research shows that 1/2 iu per day
might be a good place to start, and that it is extremely unlikely
that you will have any side effects of any kind using 1/2 iu per
day... and if you do, it is not a really bad side effect and it
is easily reversible if you lower the dose... (but 1/2 iu per
day is already about as low as a dose gets, to begin with...)
Be polite, and don't mind paying him for writing a prescription
for something that you shouldn't need a prescription to buy,
because if you were in Mexico you could just walk into a drugstore
and buy HGH as easy as you do candy, and there isn't a health
crisis in Mexico... And don't be upset that you are paying him
but you had to teach him what he should have known better than
you, because that is why you are paying for consultations with him.
Next time, consult with an anti aging doctor... you will find
several on Rejuvenation, or in the directory of the American
Academy of Anti Aging Medicine. Excuse me if I get a bit frustrated
to see that I know more than doctors who waste your time instead of
getting on to the remedy.
I paste the URL to a few good articles I found around the internet,
including our discussions and my research re: EPO
Growth Hormone in Fibromyalgia
Fibromyalgia
Fibromyalgia
EPO, Anemia, Hemoglobin, and Senility
- Ellis]
From: Lin
Re: HGH and Fibromyalgia
Hello Lin,
I also have fibromyalgia (most notably since 1999 but proably much
earlier). Like most of us, I'd been to countless doctors before
finally getting my 'dx of exclusion' since nothing showed up in lab
work. Low hormone profile in general but what can you expect for a
menopausal woman? However, I felt it was significant that my
symptoms really flared up once I hit menopause, although I seemed to
be the only one making the connection.
For me personally, hormones have played a large part in this
condition.
[For everybody, hormones play a large part in avoiding fibromyalgia,
or in having fibromyalgia... I wonder why so many doctors don't
seem to know this, yet. It isn't that difficult to learn. - Ellis]
I went to a naturopath who measured my IGF-1 values. They were
quite low and she said it looked like a clear indicator that I'd be
a good candidate for HGH. IGF-1 base levels are good to get before
starting therapy, but normal values don't mean that HGH wouldn't be
of benefit. But the fact that mine were so low indicated that there
was something going on and it was hormonally related.
There are so many theories for FMS. I believe in my case I have a
dysfunction in my HPA-axis which prevents proper hormonal signalling
by my hypothalamus. HGH seemed to allow my thyroid and sex hormone
supplementation to work.
I also have sleep apnea which prevents restorative sleep when HGH
gets produced, but where it starts probably goes back to good old
stress.
[I know a doctor must have told you that if you don't have deep
sleep, you don't have growth hormone... Doctors are brilliant,
but they don't waste time thinking about something that is so
widely taught and accepted to be true...
Well, it might be true, but I have another theory, so you can
listen to my theory. too: It isn't "deep sleep" that causes HGH
to be released... it is "low glucose levels" which occurs about
3:00 or 4:00 A.M. because that's the time of the 24 hour day when
your glucose levels are very low, because you haven't had anything
to eat since supper the night before, which was perhaps 8 to 10
hours ago... therefore glucose levels are naturally lowest at that
time of night when you also happen to be in deep sleep... So it
is not "deep sleep" that causes HGH release, and if you have
insomnia, that's too bad but that doesn't affect your HGH release.
"According to Ellis" this just happens to coincide with the
hours in which most people are deeply asleep.
Some doctor wrote an article that deep sleep causes release of GH...
another doctor checked it and found that it was true, you are deeply
asleep at 4:00 A.M. and HGH is released... And another and another
all noticed that you are deeply asleep at the hour when HGH is
released because glucose levels are low, and so they wrote more
articles, which by now are all confirming the same thing...
There is security in being in agreement with the majority, but it
still doesn't mean they are right...
Nobody has bothered to test glucose levels, since everybody was
so deeply asleep, and besides, everybody else had said the same
thing, they all agree with each other about something that I say
is not so... - Ellis]
I originally was on 1/4 IU but found 1/2 IU alot more effective.
I've been injecting myself with 1/2 UI for 2 years and it's the
major thing I can attribute to bringing my health back around.
It's helped in all ways but mainly in stiffness, pain and energy.
I've tried going off it at times, just 'to see' - after all if I
don't need to poke myself everyday and save some money, what's the
point? I quickly found out on the three occasions I did this that
my quality of life indeed is better on HGH. Plus, it makes me look
better too.
I've found an inexpensive souce so it's affordable. If you go
through someone like Ellis who can hook you up with the proper
tests and sources, it's well worth it. You don't have to go
through U.S. pharmacy rip-offs.
Dr. Robert Bennett of Oregon Health Science University is the
pioneer in researching this field, although not the only one.
Here's his website with research and contact info:
http://www.myalgia.com/
Check out the 'Scientific basis' article.
Another site with many resources is
http://www.immunesupport.com
I'm not surprised about your Dr's lack of knowledge about HGH's use
in FMS. But they're not living in a cave. This reasearch has been
available for years, and it's a good litmus test whether they're
cutting edge enough for someone with FMS.
I've found local compounding pharmacies who deal in bioidentical
hormone replacement a goldmine cause they can point you to someone
who thinks outside the medical box. I'd suggest looking for someone
in integrative medicine/naturopathy with a good background in
natural hormone replacement since so much of FMS presents as
hormonal (I do NOT mean an endo - a 99% worthless profession).
[Not worthless... but they are against us using growth hormone and
testosterone and EPO and of course, "insulin is dangerous and is a
last resort and should be avoided in diabetics" and "don't use
insulin because you will get hypoglycemia"... Most of them are
specialists in studying hormones in medical books, but they don't
use the hormones they prescribe unless they are very sick
themselves, so they seem to know less about hormones than we do on
"Rejuvenation"... - Ellis]
There are alot of resources out there and growing as our condition
becomes more acceptable (and the research money comes in).
Good luck. It gets better, really.
- Barbara
[Good post, Barbara. Thanks. Three stars for this post,
which is Barbara's personal experience. Anybody else with
fibromyalgia? Can you tell us your experience with HGH? - Ellis
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