My information to you and our group is first hand.
I am a 51 yr. old female with history of Crohns for the past decade. I can sympathize so well with your friend. Please tell her NOT TO DESPAIR! There is help!
Let me tell you from my viewpoint how this works for me. I was treated with the usual medications: Azulfadine, 6-MP, Methotrexate, Assocol, Flagyl, Cortisone enemas, and the nasty but overprescribed steroid - Prednisone!! It's the little "Pill From Hell". It removed the inflamation of the stiff joints etc, but Oh- the side effects! I swear I will never take that drug again. It's the first one they want to put you on when you have a flare up.
I had surgery to remove the large colon and had an ostomy for over 3 years. I almost died twice and was in intensive care for 36 days. It may sound crazy but the whole thing was triggered by a Mylagram -in which they inject a dye into your spine. I told the Dr. about the Crohns, but he said it would be fine.
I must have had an allergic reaction because I never left the Hospital. I had a temperature of 104ș and it was a nightmare. I'm sorry I got carried away telling this- I was hospitalized with Crohns' twice a year, every year for the past decade. It made me a wreck.
I started the injections of Hgh in April and was on them for 3 months. I was seeing this doctor who was making a small fortune on people like me and my husband. Everytime I saw him (every 2 weeks) I told him I felt terrible and that I was so tired. He could have been giving us 3/4 water for all I know.
But I then started to research the Hgh on the web. I somehow (miraculously) found Ellis and his experience, and it told his whole story.
I then spoke with Ellis and he set up a delivery in just a few days. When I received the HGH Ellis was wonderful. He is so caring and knowledgable. He walked me through every step of the mixing right down to taking the injection.
It was amazing. Let me tell you that within days I was feeling like a different person. My energy level picked up, my whole well being took on a new attitude. I can't say enough good about it. I suffered a bad flare up in between my delivery of Hgh and was having all kinds of pain and complications with a vaginal fistula.
The doctor told me about a new drug, Remicade and azthopine. He scheduled me for it in a few days. I had restarted my Hgh and was probably into my 6th or 7th day and ALL of a sudden I woke up one morning and I knew right away I was getting results from the Hgh! It completely healed the fistula and I am doing pretty good again.
It is rather a catch 22 story of why I had no Hgh level. When I had my blood test done my IGF-1 was only 52 and my DHEA was a mere 57. I was totally off the wall on not having these in my body. Finally I started thinking of all the years I was on Prednisone and realized that Prednisone shuts down the Adrenal Gland and the Adrenal Gland produces Hgh from the Pituitary- therefore draining me of my Hgh.
[Can you please explain this: "The Adrenal Gland produces HGH from the pituitary...." - Ellis]
I still think this is being studied but I for one can honestly say that this is the way I was effected. Isn't it sad too that so many of us are suffering so day in and day out. I got excited when the news release came out from Harvard Medical that Hgh and a high protein diet helped the majority of those tested.
I discussed this with the Gastro Dept. at Mayo Clinic while I was having a flare up and they Phoo-Phood the whole idea. They were for the Remicade and drugs. I feel I need to research the Remicade to a much greater depth and since I did not take it I can't tell you if it would work or not.
I've been to the best of clinics - University of Chicago (Dr Steven Hanauer), Colorado Springs, Colorado, the Cleveland Clinic, and the Mayo Clinic. For me the answer has been the injectable Hgh in the amount recommended by Ellis. Believe me you won't go wrong by trying the Hgh. Ellis is a very reliable source and I think you should try him.
I know I've gone on extensively and apologize. If I can be of ANY further help please be sure to contact me*!! Where do you live? I hope to hear from you soon. Feel well and I will pray for your dear friend too.
* note: To avoid her e-mail being picked up by spammers, I am not putting Elaine's e-mail address here. If you wish to write to her directly, write to me first (I already get spammed, so it won't bother me any more...) and I will be glad to give you her e-mail address.
[Thank you, Elaine, for an incredible and inspiring story of your suffering and finally, Hope. It not only deserves three stars, it also deserves to be posted on a page of its own...
Thank you, also, for your nice words about me. I am very flattered. This is truly my best reward, to hear that my effort to spread the word about growth hormone has helped you. In the final analysis it is growth hormone from wherever you can get it that is helping you. Too bad that such a wonderful medicine is so restricted by the authorities, and so difficult to get "permission" to use it. I have had so many cases of persons that NEED growth hormone desperately but they are denied a prescription by doctors because the FDA or other doctors say that the use they want it for (for example, macular degeneration, or healing a spinal column injury? Not approved...) is "unapproved" or "untested", or because they are "too young"... and from the doctor's point of view, I can understand that they would not give a prescription if they are going to lose their license to practice because of that... then they get it through me and the miracle happens!
I feel really happy to be able to help people to get this miraculous hormone. I will redouble my efforts to help you and others wherever and whenever I can.
A hug. - Ellis]
Sat, 25 Aug 2001, Dave/Bob wrote:
> I have crohns disease in the lower intestine w/fistula...
> I was operated on 18 yrs. ago [...] and take sulfa
> (anti inflammatory) for rest of my life.
> I was told by Dr. that because of the operation for crohns i
> was unable to absorb nutrients and vits. he recommended B-12
> injections monthly also ferrous sulfate (iron) 1 gr. daily
> and that i would be anemic the rest of my life...
> [...] I have Emphysema W/chronic bronchitis asthma ..I was
> told with having these conditions it was normal to have
> low hematocit, according to my lung specialist dr.
Crohn's disease is apparently a disease of infectious etiology.
In adults, it is linked to a mycoplasma organism found in "safe"
pasteurized milk products; this organism is called "Map"
(Mycobacterium avium, subspecies paratuberculosis).
Crohn's is also linked to Mycoplasma pneumoniae infections. Other
cases of Crohn's have been eliminated by antibiotic therapies used
to fight the ulcer-causing bacteria, Helicobacter pylori.
Whereas Dave "still" has Crohn's, which has apparently not been
treated-until-cured with the appropriate antibiotics (instead,
they cut out part of his intestines)....
And whereas he also has "Emphysema w/chronic bronchitis asthma,"
as well as doctor-declared "normal" borderline anemia....
And whereas antibiotic therapy for his probable infection(s)
(missed by all of his doctors) is a trial-and-error, long-term,
high-cost proposition -- and costly testing trials to identify
the culprit(s) has also been entirely omitted until now....
There are several safe, proven therapies that will likely treat
*all* of Dave's listed diseases, and all unidentified infections
(and more) -- without testing and without antibiotics -- i.e.,
UVBI (Ultraviolet Blood Irradiation [Photoluminescence]) and/or
HBOT (Hyperbaric Oxygen Therapy). For information on UVBI see:
Information on Ultraviolet Blood Irradiation, 1
BOOK - "Into the Light" - by Dr. William Campbell Douglass -
Into the Light by Dr. William Campbell Douglass
Also, see: "Hyperbaric Oxygen May Help Bowel Disease" -
Oxygen May Help Bowel Disease
Some medical practitioners of UVBI and HBOT can be located here
[Hello Bill. Thank you very much for all of these links. I know
nothing about these therapies, so I cannot comment on them, but I
am sure this will be of great interest to persons that suffer from
Crohn's Disease. I just want to point out that if hyperbaric
oxygen can be helpful, then Erythropoietin (EPO) might also be
helpful. (Patients should check their "hematocrit" (which means
percentage of total blood volume made up of red blood cells) and
"hemoglobin" (which is what carries oxygen in the red blood cell).
More discussion on EPO is found in the recent posts, some of which
I have pasted here:
Hematocrit, Hemoglobin, Senility, and Erythropoietin (EPO)
Three stars for this post from Bill, which is of great interest and
important for persons with Crohn's Disease, and I hope will help
others to find an effective treatment. - Ellis]
Growth Hormone May Ease Crohn's Disease
Crohn's Disease, a disorder of the digestive tract causing persistent diarrhea, abdominal pain, bleeding and breakdown of the intestinal wall, has no known cure, though drugs can ease symptoms in some patients. The cause of Crohn's is unknown, but one theory is that infections or hereditary factors weaken the intestinal wall, making it more susceptible to inflammation and tissue breakdown when it comes in contact with disease-causing organisms. An exaggerated immune response may also play a role.
Dr. Alfred Slonim of North Shore University Hospital in Manhasset, N.Y and colleagues based their research on previous studies indicating that growth hormone improved intestinal repair in patients who had part of their bowels surgically removed. Slonim theorized that growth hormone may rebuild and strengthen the intestinal wall. A high-protein diet provides the building blocks for tissue repair.
In his study, Slonim found that in 19 adults treated with growth hormone while on a high-protein diet , 11 went into remission. Of the 14 patients who improved, virtually all said their abdominal pain disappeared. They also reported less diarrhea. Side effects were mild. Of the 19 in the study, an additional three others saw significant improvement.
As a control, eighteen patients took a dummy drug while on a high-protein diet -- none reported any changes to their digestive habits. Growth hormone appeared almost as effective as the anti-inflammatory drug infliximab, the only medication approved specifically for Crohn's disease. Slonim's study, however, did not perform exams to see whether the intestinal tissue was healthier.
SOURCE/REFERENCE: New England Journal of Medicine, June 1, 2000